May 102013
 

National Fibromyalgia & Chronic Pain Association (NFMCPA) Launches National “CARE & Make Fibromyalgia Visible” Campaign, May 2013

The National Fibromyalgia & Chronic Pain Association (NFMCPA), a global community supporting individuals living with fibromyalgia (FM) and other chronic pain illnesses, announces the kick-off of its national awareness campaign “CARE & Make Fibromyalgia Visible,” Fibromyalgia Awareness Day, Sunday, May 12, 2013 — and throughout the month of May. NFMCPA calls upon individuals living with FM and their friends, family and caregivers to contribute, advocate, participate in research, as well as to educate others about fibromyalgia, a common illness involving long-term, body-wide pain, fatigue, sleep disturbances, memory problems and impaired functionality.

“We have had an overwhelmingly positive response to this campaign — with thousands of people participating in events across the country — validating our conviction that chronic pain, including fibromyalgia, is a public health crisis,” says Jan Favero Chambers, president and founder, NFMCPA. “It’s critical that those living with chronic pain raise their collective voices in order to turn the tide against the often devastating impact of chronic pain on individuals, families, communities and the nation.”

While there is no cure for fibromyalgia (FM), interdisciplinary team approaches that include medications, alternative therapies and lifestyle changes can help manage symptoms. Women are much more likely than men to develop FM, according to the Mayo Clinic. Appropriately, Fibromyalgia Awareness Day takes place over Mother’s Day weekend and includes:

  • Thunderclap, Midnight, May 11, 2013: individuals worldwide will concurrently post the “CARE & Make Fibromyalgia Visible” logo via Facebook and Twitter.
  • The Walk to CURE FM: numerous walks throughout the country.
  • Fibromyalgia Proclamations & Declarations: outreach program encourages officials to declare May 12 Fibromyalgia Awareness Day in their jurisdiction. To address controversies, prejudices and the life-altering effect of fibromyalgia, NFMCPA offers:
  • FM patient education, including symptom management
  • Coordinated advocacy for research for new treatments

Continue reading on online.wsj.com

Jacqueline Goguen‘s insight:

Fibromyalgia Awareness Day, Sunday, May 12, 2013 and throughout the month of May http://www.fmcpaware.org/

Blessings,
Jacqui

See on online.wsj.com

Apr 252013
 

What is the biopsychosocial model of understanding and treating pain? What benefits can this model have for helping to reduce my pain levels? These are questions…

Jacqueline Goguen‘s insight:

It’s nice to see that progress is being made in understanding us as integrated and complex beings. A good presentation that I had the benefit of sitting in on. Enjoy the video and share your thoughts in the comments section below…

Blessings,
Jacqui

See on vimeo.com

 

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Apr 232013
 

7 Celebrities Who Manage Life with Chronic Pain

Jillian Michaels

Health problem: Polycystic Ovary Syndrome and Endometriosis
Former trainer for The Biggest Loser and current co-host of The Doctors, Jillian Michaels kept her diagnosis of endometriosis and Polycystic Ovary Syndrome (PCOS) to herself for years, worried that it would damage her “beacon of health” reputation. The conditions can cause pain—in endometriosis, cells from the uterine lining can grow on other organs and tissue in the body; PCOS indicates a hormonal imbalance that leads to irregular menstrual cycles and small cysts in the ovaries. Michaels came forward about the conditions after a reporter’s questions about her plans to adopt prompted her to say she wouldn’t put herself through the physical challenge of pregnancy. She later clarified that since her condition can cause infertility and pregnancy may require her to have surgical procedures, she felt more comfortable adopting. She has said that while she used to suffer from debilitating abdominal pain, she found that eating a diet that includes, among other things, organic foods and nonprocessed soy and exercising regularly have helped alleviate her symptoms.

Read more on www.prevention.com

Jacqueline Goguen‘s insight:

We are not alone…!

No, I don’t mean that aliens are among us….well, they may be, but that’s not what this article is about. Millions of people live with chronic pain in the so many varied forms it can present. Here are a few faces you recognize and that might bring some inspiration into your day.

Are there other celebrities or public figures in particular that have inspired you? Or maybe it’s been a friend or loved one who has been your inspiration.

Blessings,
Jacqui

 

 

Apr 222013
 

Jacqueline Goguen‘s insight:

A great medical reference and resource in the spirit of Wiki started by @CMichaelGibson, MS, MD, because he believes “The tribe is smarter than any one”. Check out www.WikiDoc.org! Lots of information for patients and professionals.

Are there other great resources you’ve come across that have helped you better understand your chronic pain or manage it, whether disease related or not?

Blessings,
Jacqui

See on wikidoc.org