Mind and its Potential: Body in mind: the role of the brain in chronic pain

Mind & Its Potential is a vibrant and stimulating conference experience which will attract 1,000+ delegates! We are committed to bringing together the world’…

httpv://youtu.be/RYoGXv22G3k

Jacqueline Goguen‘s insight:

A very informative (and entertaining) presentation of chronic pain and how it functions within our brains.

Presented by Professor Lorimer Moseley, Professor of Clinical Neurosciences & Chair in Physiotherapy, University of South Australia; Senior Research Fellow, Neuroscience Research Australia; Author: Explain Pain and Painful Yarns: metaphors & stories to help understand the biology of pain

Blessings,
Jacqui

See on www.youtube.com

 

A Future Without Chronic Pain

Editor’s note: Chronic pain affects 1.5 billion people worldwide, an estimated 100 million of whom live in the United States. Yet we currently have no effective treatment options. Fortunately, writes David Borsook, director of the Pain and Imaging Neuroscience Group at Children’s Hospital Boston, Massachusetts General Hospital, and McLean Hospital, research advances have determined some of the ways in which chronic pain changes the brain, and several promising research areas could lead to better treatment approaches. Dr. Borsook recommends steps to facilitate these new treatments, including the establishment of integrated clinical neuroscience centers bridging the gap between bench and bedside.

The medical literature defines chronic pain as pain that has lasted for more than three months. Chronic pain is an epidemic worldwide, with 1.5 billion people feeling its effects. In the United States, about 100 million individuals are estimated to suffer from chronic pain, costing the country billions of dollars in health care and lost work productivity each year…

Jacqueline Goguen‘s insight:

Is it possible?

A fairly lengthy article, but a good one – includes a little bit of everything from history, current state and discussions of how research and treatment regarding chronic pain might proceed moving forward into the future.

Neuroscience Advances: Chronic Pain Is in the Brain

Most chronic pain conditions produce changes in the brain that contribute to what can be termed the “centralization of pain.” This implies that ongoing pain produces progressive alterations in brain connections, molecular biology, chemistry, and structure, with behavioral consequences. One brain region consistently affected in chronic pain conditions is called the dorsolateral prefrontal lobe, a region in the front of our brains thought to be involved in several higher-order functions, including cognition, motor planning, and working memory. This centralization of pain involves alterations in sensory, emotional, and modulatory circuits, which normally inhibit pain. Thus chronic pain may alter cognition and emotion, leading to increased fear, anxiety, or depression.“”

While reading it I couldn’t help but pick up on the references to cognitive and memory changes that happen. I know I have experienced changes in these areas. The comments though, are always ‘it happen’s to all of us as we get older’, or some variation on that theme.

What are your thoughts? Have you noticed those types of changes for yourself as your chronic pain has settled in?

Blessings,
Jacqui

See on www.dana.org

 

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23 Tips For Men on Supporting a Partner with Chronic Pain

Pete Beisner knows a lot about supporting a partner in pain. Here, he shares insights on how to take care of the person you love.

We will be celebrating our 14th wedding anniversary this week, and I can say without a doubt that despite the problems that come with periods of joblessness and raising two kids to maturity, the thing that has had the biggest influence on our marriage has been pain.

So, I have two sets of tips. The first set of tips is for supporting someone you love who has chronic pain. The second set of tips are practical suggestions for how to support a woman in an episode of critical pain, like just after she has had major surgery or a serious injury.

  1. I think that it is important to think of pain as your common enemy, not as a part of your wife or baggage that comes with her. It is something outside of both of you that impacts both of you and that can kill your marriage.
  2. If your wife is anything like mine, she will try to hide her pain from you. She does it for two reasons: one, she does not want to be a wuss or a whiner. Second, she knows that her in pain is distressing for those that she loves, so she hides it from us.
  3. Because women in chronic pain have to be good at ignoring their own pain, their maximum sneaks up on them and on you. Trust me when I say that you do not want to be surprised by your wife’s pain. The wall of pain will hit her hard, and if you are lucky she will end up snapping at your or the kids. If you are unlucky, she will collapse into sobs that will break your heart to hear. Before I learned to read the signs in my wife, it would seem like her breaking point would come out of nowhere. We tried to get her to tell us when she was coming up on her limit, but she only notices about 30 percent of the time, and that is after years of coaching and encouraging.
  4. To avoid a pain-storm, be on the look-out for non-verbal clues of increased pain. My wife who is normally a font of cheerful patter gets quieter the further into pain that she goes because she does not want her voice to betray her pain. She holds her body more rigid, trying not to limp and holds her breath, taking one long rasping breath for every three that I take. There is also a look of grim determination that settles in her eyes, even if she is smiling.
  5. When you note the non-verbal clues of increased pain, reflect them back to her. Ask that she put her pain on a scale from 1-10, but make note if she tends to tip to one side of the scale. My wife has had a C-section without anesthesia, so that is her 10. She rated a compound broken bone where I could see a jagged bone tip protruding through the skin of her ankle as a five. So know how she rates things. When you determine that she is in rising pain, encourage her to move towards a place where she can rest and take medication. Remind her how much the pain storm will cost her. If it is worth it for her to continue, then so be it. Do what you can to support her.
  6. Chronic pain does not mean that the person has the same level of pain every day or even at various times in the day. So encourage her to put the fun stuff first. If she has enough energy and pain relief to do a quick trip out and about, encourage her to go someplace fun rather than the grocery store
  7. Don’t let her “should” on herself—beat herself up for what she cannot do. Argue back when she expresses guilt or sets impossible expectations for herself. When my wife tells me that she is a bad mother because she couldn’t stand in the rain beside a soccer field, I remind her of all the other ways that she has been there for our kids. Encourage her to tell significant people in her life such as her boss and co-worker that her life is significantly impacted by pain. Remind her that stating the truth is not the same as complaining and it does not make her a whiner.
  8. One of my early ways of dealing with my wife’s chronic pain was to encourage my wife not to do things that caused her pain. Then I realized that if she avoided all activities that caused her pain, she would never do anything. Let her grit her teeth and get through pain for things that are important to her, even if it kills you to watch her do it. And trust your wife if she says that she wants to have sex even while in pain. Sometimes and in some women, arousal can do wonders to offer temporary relief from pain.
  9. Women in chronic pain are used to working through pain, distracting themselves, minimizing etc. They play mind games that help them get around it. But this means that they pay less attention to their bodies than other women do. In some cases, this makes it harder for the woman to get aroused. In my wife’s case, it makes her really really clumsy. I used to try to help her by saying things like “Your toes and nose should be pointed in the same direction as the location you are placing an object like a glass.” That really isn’t helpful. We have compromised: for things my wife knows are important to me, like lifting and carrying food, (I love her cooking and when it gets spilled all over the kitchen floor, I am in pain) she agrees as a favor to me to allow me to do those things. And, I keep plenty of Band-aids, ice packs and other things for the rest.
  10. The key thing to remember is that pain builds even while you are managing to ignore it. The longer your wife is in pain, the more of it she experiences and the less she can block it out. So what would be an objective level 5 pain your wife can block out to make it a level 2. But when she is no longer able to block it, it will come back as 6-8. Beware of this whiplash phenomenon.

More on goodmenproject.com

Jacqueline Goguen‘s insight:

Helpful tips and insight, not only for men who support partners, but for anyone who has someone they care about in their life that suffers from chronic pain.

Do you have any tips or insights that have been helpful in either helping you support someone suffering from chronic pain? Do those of you who suffer from chronic pain yourselves, are there any insights you can share to help our support partners better understand and support us?

Blessings,
Jacqui

 

 

It just escapes me…

…how fast time slips away!

We’re almost at the end of 2012 and it amazes me that I’ve been ashore now for more than a year and that I’ve crossed over my 4th anniversary serving in the Royal Canadian Navy.

With regards to my injury and health, things are moving along. More appointments and more tests. At this point it’s become more about making the adaptations in my daily living, and life, to best manage the pain and allow me to do some of the simplest of things.

I’ve had some very fortunate accommodations though at work with regards to my injury. I now have Dragon Naturally Speaking voice recognition software on my computer at work as well as a specially designed mouse, the Rollermouse Free2. Both have been great in helping to reduce the amount of typing and mousing that I do. The Rollermouse is great in that it significantly increases the time I can work at the computer (using the mouse) before my pain levels get to a point that I can’t anymore. Dragon is a little slower to return the benefits as it has a learning curve that can be steep, and frustrating. I’m trying to get these things for at home too because I do so much work on the computer outside of work.

The loss of independence and realizing I have to ask for help sometimes is difficult for me and having always been so health conscious and fit, my drop in fitness and the weight gain I’ve experienced has been quite upsetting. An Occupational Therapist came and spent some time sorting out changes and making suggestions of things I can do around the house to make things easier and safer. I’m also excited to start working with an Adaptive Fitness Specialist. I don’t think I’ll be running any 10k’s soon (just walking is a challenge ;-) or doing any weight lifting (the coffee pot’s about my limit right now ;-), but I’m hoping they’ll be able to make some adaptations to some basic exercises so I can feel like I’m beginning to gain back some level of fitness.  I think it will really help to have some supervision and do things in a controlled environment. As silly as it might seem, I’m hesitant to start walking because of the probability that I’m going to get around the block and then can’t get myself back home – a very real likelihood.

 

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I’ll give you something to write about…

Pen And Papers w creditI have wanted to write for a very long time.

Something about writing has always had a strong draw for me…maybe it’s the self expression, the creativity, the chronicling of my life, sharing with and helping others or maybe just the sheer indulgence of it…I’ve never been able to put my finger on it.

But something has also terrified me.

And stopped me dead in my tracks. So, needless to say, I’ve had many false starts throughout the years. I started my first journals as a teenager, and then burned them. Since the inception of the internet, I’ve started blogs and then abandoned them. Never sure about what I have to say that anyone might want to hear. And truthfully, I’m still not sure.

The Universe has given me something though that I now feel I have to write about. Something that has challenged how I view (my) life and how I will continue to experience and live in the world. I need to overcome my fear of writing, and of judgement, to share with you my experience of a possible diagnosis of Multiple Sclerosis (MS). I admit until faced with a diagnosis myself, I had absolutely no idea what MS was. I’d never known anyone with MS and had nothing other than a vague image of some debilitating disease. I’m the first to admit that’s a pretty ignorant, and narrow, understanding of a disease that afflicts so many people (I’ve since learned).

I’ve learned a lot over the last number of months.

A lot about MS, as well as a lot about myself. In the coming months I will continue to learn more about MS, as well as myself. And I will share that with you on this blog in the hopes I might comfort or inspire others living with a similar diagnosis or those being faced with a potential diagnosis. Unfortunately, MS is a very complicated disease that effects every individual very uniquely. I’ve heard that if you were to put 100 people with MS in a room, it would look like 100 different diseases. It’s this about the disease that makes it so difficult to diagnose, and to deal with. And why so many, if not most people, live with MS for years before receiving a formal diagnosis.

There’s a lot of ground to cover so to get you started I’m going to leave you with one of most inspiring things I have come across yet in my search. There are others, but we’ll get to those in time. I’d like to introduce you to the book Overcoming Multiple Sclerosis (OMS) by Professor George Jelinek.

Diagnosed with MS in 1999, Professor Jelinek has gone 13 years without relapse. Read how as both a doctor and person with MS, he has helped countless people with MS lead healthy and productive lives.

from www.OvercomingMultipleSclerosis.org

If you or someone you know has MS, I encourage you to hop over344 and browse through the many resources and wonderful community he has created. His experiences with MS and the OMS program are detailed in his book below, and which you can order from Amazon.

Blessings. And be well…
Jacqueline

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